Data Architect for Research (80-100%)

Kilchberg – Zurich

The European Alliance of Associations for Rheumatology, EULAR, is the organisation which represents the people with arthritis/rheumatism, health professionals, and scientific societies of rheumatology of all the European nations. EULAR is a non-profit scientific and educational association recognised by Swiss law.

The EULAR Research Centre as part of EULAR facilitates collaborative basic, clinical, and translational research. Within this research centre, EULAR aims to develop two database-related projects:

A pan-European database of patient data, collected directly from the patients with rheumatic and musculoskeletal diseases, which will enable comparative health services and burden of illness research on a longitudinal scale.

A unique compendium of data on the different facets of rheumatic and musculoskeletal diseases across Europe, aiming to provide a comprehensive and comparative landscape about the status-quo, inequalities, healthcare gaps, and needs for rheumatology at a European level.

EULAR is looking for an all-rounder with excellent skills in building data pipelines and analysing data who can pioneer the IT foundations for the EULAR Research Centre. You will work in close collaboration with the research manager and our different departments, as well as with our volunteers and key stakeholders, who are experts in public health and epidemiology. With the growing IT landscape of EULAR, this position can be developed to include responsibility for other IT projects and infrastructures depending on your profile and interests.

EULAR is looking for an individual with in-depth IT knowledge and experience in managing relationships and collaboration within international multi-disciplinary teams. A regular employment contract can only be offered to candidates residing in Switzerland.

 

Your tasks:

  • Gather, document, and communicate requirements from stakeholders to support the collection and management of data.
  • Design and develop data capture systems, primarily based on REDCap.
  • Monitor the data capture system, request upgrades, implement any customisations, create and manage the user accounts, and manage the internal access rights to the data capture system (REDCap or other).
  • Work collaboratively across international multi-disciplinary teams and centres to support data-intensive research.
  • Data cleaning and validation of large-scale datasets, as well as developing data mapping/linkage across systems.
  • Prepare datasets for analysis and share with collaborators and stakeholders.
  • Develop appropriate documentation relating to databases/datasets and data management.
  • Contribute to core research outputs including journal articles, publications, webinars, conferences and workshops.
  • Be responsible and neutral, and data security aware.
  • Work in compliance with GDPR and EULAR regulations.
  • Manage own professional development, keeping abreast of new developments within areas of expertise.

 

Your profile:

  • Master or bachelor’s degree
  • Considerable experience in developing, managing, coordinating and working with large-scale datasets, preferably health research studies within musculoskeletal research.
  • Track record for initializing IT setups for data projects and building reliable and lasting solutions.
  • Proven experience in designing and coding the various stages of data acquisition and evaluation pipelines such as extraction, aggregation, and preparation of data for analytical purposes.
  • Proven experience with data analytics tools and scripting languages.
  • Proven experience with tools for visualising data, including dashboards.
  • Preferably experience in developing and building advanced survey and data capture systems using REDCap.
  • Understanding data quality issues and experience in performing data cleaning/validation.
  • Experience in creating documentation relevant to database/dataset creation, management, and curation.
  • Excellent project management skills, including gathering and documenting project requirements, planning, and time management.
  • Excellent written, verbal, and presentation skills in English with the ability to communicate with a wide range of research, clinical, managerial staff, and suppliers in a clear and concise manner.
  • Experience in training and/or disseminating information through documentation and presentations.
  • Preferably understanding of the relevant legislation and clinical information governance covering patient confidentiality and privacy protection, specifically GDPR.
  • Willingness to travel for work purposes nationally and internationally as required.
  • Interest in working with diverse people from different cultures.

 

Benefits:

  • International environment
  • Opportunity to travel
  • Flexible working hours and the possibility of working from a home office

 

Start date: Immediate

Interested?

Send us your CV, reference letters (max. 2) and letter of motivation in one PDF file.

E-mail address: research@eular.org

Subject line: Data Architect

Interested?

Send us your CV, reference letters (max. 2) and letter of motivation in one PDF file.

E-mail address: research@eular.org

Subject line: Data Architect